Intellectual and Developmental Disabilities Resources

AAMR

The Association of University Centers on Disabilities (AUCD)

   

ADA Hot Links and Document Center

 

Adaptive Computing Technology Center

 

The University of Missouri Columbia, Department of Campus Computing, Adaptive Computing Technology (ACT) Center's goal is to implement adaptive computing in a manner which enhances integration of people with disabilities into the higher education environment.

 

AHRC New York City

 

This site provides valuable information, resources, and communication opportunities for persons with developmental disabilities, those who care for them, and the professionals who work with them.

 

Arc of the United States

 

An organization committed to the welfare of children and adults with mental retardation.

   

Autism Research in Genetics and Neuroimaging

 

Genetic and family studies on autism, autism spectrum disorders, and other developmental disorders.

 

Autism Society of America

 

Babcock Center

 

A private, non-profit agency that serves people with mental retardation, autism, head injuries, spinal cord injuries or related disabilities. It serves residents of Richland and Lexington counties, South Carolina, but also responds to needs outside this primary area.

 

Best Buddies

 

The mission of Best Buddies is to enhance the lives of people with mental retardation by providing opportunities for one-to-one friendships and integrated employment.

 

Girls and Boys Town National Research Hospital

 

An institute that provides evaluation and treatment of children with communication disorders and carries out research in related areas.

 

Camphill Soltane

 

Camphill Soltane is a life-sharing educational community for and with young adults with developmental disabilities ages 18 to 25. Located on 55 acres in rural Chester County, Pennsylvania, 30 miles northwest of Philadelphia, Camphill Soltane creates a comprehensive, therapeutic and supportive environment where resident volunteers and their families make their home together with young people in need of special care.

 

Camp Lee Mar

 

A private residential camp in Pennsylvania for children and young adults with learning and developmental disabilities.


Center for Neuroscience

 

The University of Wisconsin-Madison's Center for Neuroscience

 

Center for the Study and Advancement of Disability Policy

 

Part of the George Washington University Medical Center's Institute for Health Policy, Outcomes, and Human Values.

 

Child Neurology Home Page

 

A site whose main purpose is to co-ordinate the available Internet resources concerning issues in Child Neurology.

 

Children Who Are Mentally Retarded

 

One of the Facts for Families information sheets from the American Academy of Child and Adolescent Psychiatry (AACAP).

 

Civitan International Research Center

 

A research center at the University of Alabama at Birmingham devoted to improving the well-being and the quality of life of individuals and families affected by mental retardation and developmental disabilities.

 

Community of Caring

 

A non-profit organization that works to implement and encourage five values – caring, responsibility, respect, trust, and family – in our nation's schools. By doing so, they address destructive attitudes that lead to early sexual involvement, teen pregnancy, substance abuse and dropping out of school.

 

Crotched Mountain Foundation

 

The Foundation serves children and adults who are physically, emotionally or intellectually challenged.

 

Developmental and Behavioral Pediatrics Home Page

 

This site covers medical aspects of child development and behavior for physicians, but is also of interest to psychologists, teachers, therapists, and parents.

 

disABILITY Resources on the Internet

 

A page maintained by J. Lubin with links to other Web sites dealing with disabilities.

 

Discover Technology

 

A company specializing in technology access for people with physical and mental challenges

 

DO-IT at the University of Washington

 

DO-IT (Disabilities, Opportunities, Internetworking and Technology) at the University of Washington, increasing the participation of individuals with disabilities in science, engineering, and mathematics academic programs and careers.

 

Down Syndrome Association of Minnesota

The Web site of the Down Syndrome Association of Minnesota.

 

Down Syndrome WWW Page

A compilation of articles from members of the Down Syndrome List Server.

 

Elwyn's Home Page

An international non-profit human services organization serving people with mental and physical disabilities, mental illness, the elderly, emotionally troubled and economically disadvantaged people.

 

The Family Village

A global community on the Internet for families of persons who have disabilities, located at the University of Wisconsin-Madison Waisman Center.

 

FRAXA Research Foundation Home Page

FRAXA Research Foundation supports research aimed at finding a specific treatment for fragile X, the #1 inherited cause of mental retardation, affecting an estimated 1 in 1000 children.

 

Georgetown University's Kennedy Institute of Ethics

The Joseph P. and Rose F. Kennedy Institute of Ethics, established at Georgetown University in 1971, is a teaching and research center offering ethical perspectives on major policy issues.  It is the largest university based group of faculty members in the world devoted to research and teaching in biomedical ethics and other areas of applied ethics.  The Institute also houses the most extensive library of ethics in the world, the National Reference Center for Bioethics Literature; produces bibliographic citations relating to bioethics for the online databases at the National Library of Medicine; and conducts regular seminars and courses in bioethics.

 

Growing Minds Autism Programs

Specialists in training parents whose children have Autism, PDD and Asperser's Syndrome. Offers 5 day programs with 6 months continuing distance support.  Web site includes articles, program information, progress reports and a discussion forum.
 

The Guided Tour, Inc.

Travel for persons with developmental and physical challenges.

 

Health Promotion Project

A project that aims to reduce, overcome, or eliminate barriers people with developmental disabilities encounter while trying to obtain health care. Supported in large part by the Wisconsin Council on Developmental Disabilities.

 

The Inclusion Website

Children with special needs are now part of the regular classroom. Teachers seeking success with inclusion will find help and inspiration here.

 

The Individuals With Disabilities Education Act (IDEA) Amendments of 1995

An informational Web page from the U.S. Department of Education.

 

Institute for Disability Policy

At the Muskie Institute of Public Affairs, University of Southern Maine, the Institute’s mission is to enhance the well-being of individuals with disabilities, schools and community organizations through training, research, technical assistance, and example.

 

Institute on Community Integration

A University Affiliated Program at the University of Minnesota, dedicated to improving community services and social supports for persons with developmental disabilities and their families.

 

Institute on Disability and Human Development (UAP)

A University Affiliated Program at the University of Illinois at Chicago that conducts research and provides services for persons with mental and physical disabilities and their families, as well as carrying out interdisciplinary graduate education and outreach training activities.

 

Institute for Special Education

The Web site at the University of Fribourg/Switzerland, with information on their research programs, publications, and calendar of events.

 

Intellectual Disability Information Service

A WWW page of information from Monash University, Melbourne, Australia.

 

International Order of Alhambra

The Web site of a Fraternal Order of Catholic Men Dedicated to assisting persons developmentally disabled by mental retardation

 

Irwin Siegel Agency, Inc.

An insurance agency that has developed an insurance program specifically for agencies providing services to people with disabilities - and their special coverage needs.

 

Japan Down Syndrome Network (English version)

JDSN is a center dedicated to information and communication relating to Down syndrome in Japan and worldwide. Click here to see the Japanese version.

 

Job Accommodation Network

A service of the President's Committee on Employment of People with Disabilities.

 

JP Das Developmental Disabilities Centre

A research and training centre located within the Department of Educational Psychology in the Faculty of Education at the University of Alberta in Edmonton, Canada; activities include research, student training, publication, and selected clinical services for children and adults with mental retardation and other disorders that affect learning and originate in the childhood.

 

Kansas Mental Retardation/Developmental Disabilities Research Center

The Web site of the Mental Retardation Research Center (MRRC) affiliated with the University of Kansas.

 

LAB Resources

The Web site of a Wisconsin company that has been in business specializing in assistive technology for 6 years.

 

Laureate Learning Systems, Inc.

The Web site of a company that offers over 70 special needs software packages for individuals with developmental disabilities, language-learning disabilities, physical disabilities, and autism.

 

Learning Foundations

The Web site of a foundation in Australia that provides information for parents and teachers on learning disability and A.D.D.

 

Little City Foundation

The Web site of a foundation that provides services for people with cognitive and other developmental challenges at their campus in Palatine, Illinois (near Chicago).

 

Lt. Joseph P. Kennedy Institute

The Lt. Joseph P. Kennedy Institute provides services for children, youth and adults with developmental disabilities in the District of Columbia and Prince George's and Montgomery Counties in Maryland. 

 

Mental Health Net

"The largest, most comprehensive guide to mental health online."

 

Mental Retardation Research Center UCLA

The general aims of this center are the acquisition of new knowledge on mental retardation and related aspects of human development and the training of research personnel.

 

National Association of Developmental Disabilities Councils

The Web site of the NADDC, whose mission is to promote national policy which provides individuals with developmental disabilities the opportunity to make choices regarding the quality of their lives and be included in the community; and to provide support and assistance to member Councils.

 

National Center on Educational Outcomes

The Web site of the NCEO, which provides national leadership in the identification of outcomes and indicators to monitor educational results for all students, including students with disabilities.

 

The National Center on Outcomes Research (NCOR)

NCOR is designed to use the national values of independence, productivity, integration, inclusion, personal responsibility, self-determination, and choice to examine the status of people with disabilities throughout their everyday lives.

 

National Home Of Your Own Alliance

The Web site of a unique program, initiated by the Institute on Disability, a University Affiliated Program, that provides persons with developmental disabilities the choice to lease or purchase their own home, thereby freeing them from the constraints of institutional living and giving them more control over their lives and the services they require.

 

National Institute on Life planning for Persons with Disabilities

A Web site that seeks to provide an efficient method of disseminating information on all aspects of Life Planning to persons with disabilities, families and professionals.

 

NCSA Mosaic Access Page

A resource for those interested in how people with disabilities can use the Internet and the World Wide Web. The short term goals of this project are to identify some of the major barriers people with disabilities encounter using NCSA Mosaic.

 

National Information on Disability

A Gopher site consisting of a directory of national information on disabilities maintained by the U.S. Department of Education, Office of Special Education and Rehabilitative Services.

 

http://www.nichcy.org/ - National Dissemination Center for Children with Disabilities

 

Northamptonshire People First

The home page of an organization in England run and controlled by people with learning difficulties.

 

Our Kids

A WWW page devoted to raising kids with special needs.

 

PACER Center

A non-profit coalition of 20 disability organizations serving as the parent training and information center for Minnesota. PACER Center strives to improve and expand opportunities that enhance the quality of life for children and young adults with disabilities and their families.

 

Parents Helping Parents

A resource center for children with mental, physical, emotional, or learning disabilities whether due to birth defects, illness, or accident.

 

People First of the North Shore

The home page of a self-advocacy group of folks who would like to be known as People First.

 

President's Committee on Mental Retardation

The Committee established in 1966 to focus on this critical subject of national concern.

 

3rd National QMRP (Qualified Mental Retardation Professional) Conference

Information obtained from the 3rd National QMRP Conference held August 18 - 21, 1998 in San Antonio, Texas.

 

Rehabilitation Research and Training Center on Aging with Mental Retardation (RRTCAMR)

A national resource for researchers, planners, providers, self-advocates, families and students in the field of aging and mental retardation.

 

Research Healthpage for Older Women with Disabilities

A page designed to be both a resource for older women with disabilities and an exploratory aid for research.

 

Research Project in The Netherlands

A project for better diagnosis and treatment for children with mildly retardation and behavioral disabilities.

 

The Rose Fitzgerald Kennedy Program to Improve Catholic Religious Education for Children and Adults with Mental Retardation

A comprehensive Catholic religious education program written in a developmental mode and is appropriate for use in the inclusive classroom, the specialized classroom or in the home setting.

 

St. Coletta

The St. Coletta Community, guided by the Franciscan values of caring and respect, supports people with developmental challenges to attain their highest level of human potential and spiritual awareness.

 

The Schizophrenia Home Page

Not-for-Profit Resource & Education Center for the brain disorder Schizophrenia.

 

Sharing Down Syndrome Arizona

A non-profit parent run organization supporting families with children diagnosed with Down syndrome.

 

Eunice Kennedy Shriver Center

The Shriver Center at the University of Massachusetts Medical School in Waltham promotes the understanding of neurological, cognitive and behavioral development associated with developmental disabilities, emphasizing mental retardation.  To accomplish this, the Shriver Center conducts basic and applied research to determine the biological and environmental factors that influence typical and atypical development and provides training and service programs that directly benefit people with developmental disabilities and their families.

 

Sibling Support Project

The Web site of a project at the Children's Hospital and Medical Center in Seattle, dedicated to the interests of brothers and sisters of people with special health and developmental needs. Offers access to SibNet, the first and only listserv for and about brothers and sisters of people with special health, developmental, and emotional needs.

 

Social Work 644

A Web site that describes Social Welfare Issues in Developmental Disabilities, a 2-3 credit distance education course that uses pre-produced videotaped lectures, printed materials and telephone office hours for undergraduate and graduate level students throughout Wisconsin, offered by the University of Wisconsin-Madison's School of Social Work.

 

Son-Rise Program

The Option Institute fellowship programs for families with special children, including those with autism, attention deficit disorder, brain impairment, pervasive developmental delay, cerebral palsy, mental retardation, epilepsy, neurological or muscular disorders, etc.

 

Special Camp for Special Kids

The Web site of a non-profit organization that provides a summer day camp for disabled youths in the Southern California area. Parents who have disabled children and want to enroll them in the program or wish to contact Special Camp about setting up a similar program may find this Web site useful.

 

Special Kids

The Web site of a company, founded by the parents of a child with autism, that sells learning videos, CD-ROMs and picture books for children with special needs.

 

Special Needs Education Network

A Web site created under the auspices of the SchoolNet project, a cooperative initiative of Canada's provincial, territorial, and federal governments, in consultation with educators, universities, colleges and industry; it provides Internet services specific to parents, teachers, schools, and other professionals, individuals, groups, and organizations involved in the education of students with special needs.

 

Special Olympics International, Inc.

An international organization dedicated to empowering individuals with mental retardation to become physically fit, productive and respected members of society through sports training and competition.

 

Special Olympics Wisconsin

Special Olympics Wisconsin is a statewide organization providing persons with cognitive disabilities year-round sports training and competition. With seven Area offices throughout the state, Special Olympics Wisconsin serves over 8,000 athletes in nearly 230 communities statewide.

 

Sprout!

Founded in 1979, Sprout is a private, non-profit organization dedicated to helping individuals with developmental disabilities and mental retardation grow through challenging and safe travel experiences. Based in New York City, our programs are available to people with mental retardation and developmental disabilities and the agencies that serve them throughout the U.S.

 

Sullivan County Community Resource Center

A chapter of NYSARC, Inc. formerly the NYS Association for Retarded Citizens--for people with developmental disabilities and mental retardation and their families, Sullivan County Monticello, New York.

 

Texas Department of Mental Health and Mental Retardation

The WWW page of the Texas governmental agency whose mission is to "offer an array of services which respond to the needs of people with mental illness and mental retardation and which enable them to make choices that result in lives of dignity and increased independence."

 

Thomas S. Services Coordination Project

The Web site of a project that has been conceived to assess the current intra and inter-organizational relations within area programs and area service delivery networks, to identify a series of best practices which appear to characterize well-functioning programs, and to lay the groundwork for a number of targeted interventions aimed at improving coordination and communication within networks of services relevant to Thomas S. class members.

 

Trace Research and Development Center

The Trace Center was formed in 1971 to address the communication needs of people who are non-speaking and have severe disabilities. Since then, the center has expanded its scope to cover "communication" in a broader sense.

 

UCLA's Mental Retardation Research Center

A center devoted to the acquisition of new knowledge on mental retardation and related aspects of human development and the training of research personnel.

 

Vanderbilt University's John F. Kennedy Center

The Center's mission is to conduct and support collaborative research, training, and information dissemination on behavioral, intellectual, and brain development.

 

Waisman Center

Located at the University of Wisconsin-Madison, one of 14 national centers dedicated to the advancement of knowledge about human development and developmental disabilities.

 

"With A Little Help From My Friends..."

A series on contemporary supports to people with mental retardation from the President's Committee on Mental Retardation (PCMR).

 

The Workshops, Inc.

A non-profit organization that enters into an annual contract with the Stark County (Ohio) Board of Mental Retardation and Developmental Disabilities to secure and manage work done for area businesses and industries at the four Stark MRDD workshops and numerous other customer work locations.

 

Wyoming Division of Developmental Disabilities

Responsible for the Wyoming State Training School in Lander, Wyoming, as well as extensive preschool services, early intervention services, children's home and community-based services, adult home and community-based waiver services throughout Wyoming.

 

YAI/National Institute for People with Disabilities

A non-profit health and human services agency in New York state.

 


Last updated September 12, 2002 by sbrown@jpkf.org.
Document source: http://www.jpkf.org/mrsites.html