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Intellectual and Developmental Disabilities Resources

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Adaptive Computing Technology Center

The University of Missouri Columbia, Department of Campus Computing, Adaptive Computing Technology (ACT) Center's goal is to implement adaptive computing in a manner which enhances integration of people with disabilities into the higher education environment.

ANCOR – The American Network of Community Options and Resources

This organization represents providers of services and supports to people with intellectual and developmental disabilities nationwide.

Association on University Centers on Disabilities (AUCD)

This organization represents the University Centers for Excellence, the Leadership Education in Neurodevelopmental Disabilities and the Intellectual and Developmental Disabilities Research Centers funded by the U S Eunice Kennedy Shriver Intellectual and Developmental Disabilities esearch program of the National Institutes of Health.

The Arc of the United States

An organization committed to the welfare of children and adults with intellectual and developmental disabilities. .

Autism Research in Genetics and Neuroimaging

Genetic and family studies on autism, autism spectrum disorders, and other developmental disorders.

Autism Society of America

Autistic Self Advocacy Network

Best Buddies

The mission of Best Buddies is to enhance the lives of people with intellectual disabilityby providing opportunities for one-to-one friendships and integrated employment.

Center for Neuroscience

The University of Wisconsin-Madison's Center for Neuroscience

Child Neurology Home Page

A site whose main purpose is to co-ordinate the available Internet resources concerning issues in Child Neurology.

Children Who Are Intellectually Disabled

One of the Facts for Families information sheets from the American Academy of Child and Adolescent Psychiatry (AACAP).

Civitan International Research Center

A research center at the University of Alabama at Birmingham devoted to improving the well-being and the quality of life of individuals and families affected by intellectual disabilityand developmental disabilities.

Community of Caring

A non-profit organization that works to implement and encourage five values – caring, responsibility, respect, trust, and family – in our nation's schools. By doing so, they address destructive attitudes that lead to early sexual involvement, teen pregnancy, substance abuse and dropping out of school.

Consortium of Citizens with Disabilities

The Consortium for Citizens with Disabilities is a coalition of approximately 100 national disability organizations working together to advocate for national public policy that ensures the self determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.

Developmental and Behavioral Pediatrics Home Page

This site covers medical aspects of child development and behavior for physicians, but is also of interest to psychologists, teachers, therapists, and parents.

Down Syndrome Resources

There are two prominent organizations providing information and resources for families. The National Down Syndrome Society and the National Down Syndrome Congress. Both websites have a great deal of useful information on medical, social, educational and family resources for people with Down syndrome.

Discover Technology

A company specializing in technology access for people with physical and mental challenges

DO-IT at the University of Washington

DO-IT (Disabilities, Opportunities, Internetworking and Technology) at the University of Washington, increasing the participation of individuals with disabilities in science, engineering, and mathematics academic programs and careers.

Down Syndrome - NDSS
Down Syndrome - NDSC Center

A compilation of articles from members of the Down Syndrome List Server.

The National Center for Prenatal and Postnatal Down Syndrome Resources

New and expectant parents need accurate, up-to-date, and medically balanced information about health conditions that can cause intellectual disability as described in the Prenatally and Postnatally Diagnosed Conditions Awareness Act passed in 2008 under the leadership of Sam Brownback (R-Kan.) and the late Senator Ted Kennedy (D-Mass.). To fill that need for prenatal and postnatal information about Down syndrome, the Kennedy Foundation sponsored and owns the copyright to "Understanding a Down Syndrome Diagnosis".

The Family Village

A global community on the Internet for families of persons who have disabilities, located at the University of Wisconsin-Madison Waisman Center.

FRAXA Research Foundation Home Page

FRAXA Research Foundation supports research aimed at finding a specific treatment for fragile X, the #1 inherited cause of intellectual disability, affecting an estimated 1 in 1000 children.

Georgetown University's Kennedy Institute of Ethics

The Joseph P. and Rose F. Kennedy Institute of Ethics, established at Georgetown University in 1971, is a teaching and research center offering ethical perspectives on major policy issues.  It is the largest university based group of faculty members in the world devoted to research and teaching in biomedical ethics and other areas of applied ethics.  The Institute also houses the most extensive library of ethics in the world, the National Reference Center for Bioethics Literature; produces bibliographic citations relating to bioethics for the online databases at the National Library of Medicine; and conducts regular seminars and courses in bioethics.  

The Inclusion Website

Children with special needs are now part of the regular classroom. Teachers seeking success with inclusion will find help and inspiration here.

The Individuals With Disabilities Education Act (IDEA) Amendments of 2004

An informational Web page from the U.S. Department of Education.

Institute on Community Integration

A University Affiliated Program at the University of Minnesota, dedicated to improving community services and social supports for persons with developmental disabilities and their families.

Institute on Disability and Human Development (UAP)

A University Affiliated Program at the University of Illinois at Chicago that conducts research and provides services for persons with mental and physical disabilities and their families, as well as carrying out interdisciplinary graduate education and outreach training activities.

International Order of Alhambra

The Web site of a Fraternal Order of Catholic Men Dedicated to assisting persons developmentally and intellectually disabled.

Irwin Siegel Agency, Inc.

An insurance agency that has developed an insurance program specifically for agencies providing services to people with disabilities - and their special coverage needs.

Job Accommodation Network

A service of the President's Committee on Employment of People with Disabilities.

JP Das Developmental Disabilities Centre

A research and training centre located within the Department of Educational Psychology in the Faculty of Education at the University of Alberta in Edmonton, Canada; activities include research, student training, publication, and selected clinical services for children and adults with intellectual disabilityand other disorders that affect learning and originate in the childhood.

Laureate Learning Systems, Inc.

The Web site of a company that offers over 70 special needs software packages for individuals with developmental disabilities, language-learning disabilities, physical disabilities, and autism.

Mental Health Net

"The largest, most comprehensive guide to mental health online."

Mental Retardation Research Center UCLA

The general aims of this center are the acquisition of new knowledge on intellectual disabilityand related aspects of human development and the training of research personnel.

National Association of Developmental Disabilities

The Web site of the NADDC, whose mission is to promote national policy which provides individuals with developmental disabilities the opportunity to make choices regarding the quality of their lives and be included in the community; and to provide support and assistance to member Councils.

National Disability Rights Network (NDRN)

The organization representing the State Protection and Advocac Organizations for persons with disabilities.

National Home Of Your Own Alliance

The Web site of a unique program, initiated by the Institute on Disability, a University Affiliated Program, that provides persons with developmental disabilities the choice to lease or purchase their own home, thereby freeing them from the constraints of institutional living and giving them more control over their lives and the services they require.

National Information on Disability

A Gopher site consisting of a directory of national information on disabilities maintained by the U.S. Department of Education, Office of Special Education and Rehabilitative Services.

National Dissemination Center for Children with Disabilities

Northamptonshire People First

The home page of an organization in England run and controlled by people with learning difficulties.

Our Kids

A WWW page devoted to raising kids with special needs.

PACER Center

A non-profit coalition of 20 disability organizations serving as the parent training and information center for Minnesota. PACER Center strives to improve and expand opportunities that enhance the quality of life for children and young adults with disabilities and their families.

Parents Helping Parents

A resource center for children with mental, physical, emotional, or learning disabilities whether due to birth defects, illness, or accident.

President's Committee on Intellectual Disabilities

The Committee established in 1966 to focus on this critical subject of national concern.

Rehabilitation Research and Training Center on Aging with Mental Retardation (RRTCAMR)

A national resource for researchers, planners, providers, self-advocates, families and students in the field of aging and intelectual disability.

Research Healthpage for Older Women with Disabilities

A page designed to be both a resource for older women with disabilities and an exploratory aid for research.

Research Project in The Netherlands

A project for better diagnosis and treatment for children with mild intellectual and behavioral disabilities.

The Schizophrenia Home Page

Not-for-Profit Resource & Education Center for the brain disorder Schizophrenia.

Self Advocates Becoming Empowered

A nationwide advocacy organization governed by people with disabilities, working on issues related to freedom, clsure of institutions and individual empowerment.

Eunice Kennedy Shriver Center

The Shriver Center at the University of Massachusetts Medical School in Waltham promotes the understanding of neurological, cognitive and behavioral development associated with developmental disabilities, emphasizing intellectual disability.  To accomplish this, the Shriver Center conducts basic and applied research to determine the biological and environmental factors that influence typical and atypical development and provides training and service programs that directly benefit people with developmental disabilities and their families.

Sibling Support Project

The Web site of a project at the Children's Hospital and Medical Center in Seattle, dedicated to the interests of brothers and sisters of people with special health and developmental needs. Offers access to SibNet, the first and only listserv for and about brothers and sisters of people with special health, developmental, and emotional needs.

Social Work 644

A Web site that describes Social Welfare Issues in Developmental Disabilities, a 2-3 credit distance education course that uses pre-produced videotaped lectures, printed materials and telephone office hours for undergraduate and graduate level students throughout Wisconsin, offered by the University of Wisconsin-Madison's School of Social Work.

Son-Rise Program

The Option Institute fellowship programs for families with special children, including those with autism, attention deficit disorder, brain impairment, pervasive developmental delay, cerebral palsy, intellectual disability, epilepsy, neurological or muscular disorders, etc.

Special Camp for Special Kids

The Web site of a non-profit organization that provides a summer day camp for disabled youths in the Southern California area. Parents who have disabled children and want to enroll them in the program or wish to contact Special Camp about setting up a similar program may find this Web site useful.

Special Kids

The Web site of a company, founded by the parents of a child with autism, that sells learning videos, CD-ROMs and picture books for children with special needs.

Special Needs Education Network

A Web site created under the auspices of the SchoolNet project, a cooperative initiative of Canada's provincial, territorial, and federal governments, in consultation with educators, universities, colleges and industry; it provides Internet services specific to parents, teachers, schools, and other professionals, individuals, groups, and organizations involved in the education of students with special needs.

Special Olympics International, Inc.

An international organization dedicated to empowering individuals with intellectual disabilityto become physically fit, productive and respected members of society through sports training and competition.

Sprout!

Founded in 1979, Sprout is a private, non-profit organization dedicated to helping individuals with developmental disabilities and intellectual disabilitygrow through challenging and safe travel experiences. Based in New York City, our programs are available to people with intellectual disabilityand developmental disabilities and the agencies that serve them throughout the U.S.

Stairlifts Advisor

A helpful guide to stairlifts, comparing different models and offering practical advice.

Trace Research and Development Center

The Trace Center was formed in 1971 to address the communication needs of people who are non-speaking and have severe disabilities. Since then, the center has expanded its scope to cover "communication" in a broader sense.

UCLA's Mental Retardation Research Center

A center devoted to the acquisition of new knowledge on intellectual disabilityand related aspects of human development and the training of research personnel.

United National Convention on the Rights of Persons with Disabilities

International Convention, signed by national governments working to promite the rights and societal inclusion of all persons with disabilities.

Vanderbilt University's John F. Kennedy Center

The Center's mission is to conduct and support collaborative research, training, and information dissemination on behavioral, intellectual, and brain development.

Waisman Center

Located at the University of Wisconsin-Madison, one of 14 national centers dedicated to the advancement of knowledge about human development and developmental disabilities.

"With A Little Help From My Friends..."

A series on contemporary supports to people with intellectual disabilityfrom the President's Committee on Mental Retardation (PCMR).    


Last updated August, 2009